For years, Jennifer and her family searched for a diagnosis to better explain the symptoms plaguing Jules since birth; some symptoms were similar to Autism while others were inexplicably different. With so few available explanations, the search to find ways to help Jules was an isolating and heartrending one. But in 2016, with the help of breakthroughs in the science of genetic testing, Jules was diagnosed with OCNDS, a rare genetic syndrome. At the time, Jennifer only knew of 5 other patients with OCNDS. Jennifer was determined to figure out how to further OCNDS research as well as find and support individuals with OCNDS. In 2018, Jen and her husband Jason launched the CSNK2A1 Foundation.
Prior to her work with the CSNK2A1 Foundation, Jennifer worked as an Estate Planning and Tax Attorney, advising local non-profit organizations on planned giving and fundraising. Jennifer is active in her own community and in other nonprofit organizations. She serves as a Board Member for BOK Ranch, a non-profit organization providing therapeutic horseback riding for clients with special needs. She also serves on the West Coast Advisory Council for the Child Mind Institute, an independent, national nonprofit dedicated to transforming the lives of children and families struggling with mental health and learning disorders. She is a founding board member of the Live Like Leo Foundation, a non-profit foundation dedicated to giving young minds and their families opportunities to become global citizens, empowering them to lead their communities with compassion and inclusion in order to create a kinder and more connected world.
Jennifer received a B.A. from the University of California, Berkeley, and her J.D. from Pepperdine University. She currently resides in the San Francisco Bay Area with her husband, Jason, their 2 children and their mini zoo consisting of 3 cats and 2 dogs.